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Re: Tumor markers are up, & so is my anxiety!
Chelee, you were diagnosed and treated just about the same time as me with similiar diagnosis. I have never been refused a scan or test when I asked for it. My insurance has been mediocre at best, but covers some of the scans.
My TM scores "lived" in the 40s most of the time. 30s was good. My last one was 28 and I have still been celebrating. I got a CTC (circulating tumor cells) test not long ago and it gave me such peace of mind. I get TMs every 3 months. You have the right to be involved in your care.
Is your onc the only one in town? Do you have choices?
Just want to lend my support and tell you I'm on your side.
Hope you can find a good outlet for the stress and anger energy! It's the times my house gets the best cleaning!
Thinking good thoughts for you, ma
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MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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