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Old 09-06-2009, 05:28 PM   #4
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: Radiation choices?

Dear Marcia

High five to you for even thinking about this very important question. Like most, I though radiation was a standard, calculated thing and I think, for the most part, it probably is.

Tomorrow is my 5 year cancersary so I figure I must have done some things right but for radiation - I think I really dropped the ball (Herceptin wasn't available then and I was spending so much of my energy trying to obtain it, I dropped the ball on rads thinking it was all just standard protocol). You see, on my non cancerous side, I was diagnosed with a tiny, low grade DCIS of which I was told I did not need rads on that side. The jury is really out on that decision but I never investigated rads as I had on everything else (AND I did get 16 months of Herceptin (starting 4 months after chemo was done and 2 months after rads was done) so I think that's why all is still well with me.

Ask, ask, ask questions on rads. Will the rad field encompass the lymph node area?
Will you get a boost to the tumor bed and lymph node bed? How many whole chest wall rad sessions will you get and how many boosts? What will happen if your skin does not hold up? What pre or post creams etc will you need to have on hand?

What other organs or "parts" will be in the rad field (so if your ribs hurt in the first year you don't freak).

You are smarter than you think - trust that, you are to ask about rads (which I do think is pretty standardly calculated for each of us).

Cheers to you and have a nice Labor Day!
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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