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Re: Stage I, how do is NED/progression normally monitored?
Dear ahdubose,
I am a stage 1 NED patient too. I have had a concerns about this too. All three of my onco's have stated that I will not have scans or MRI's unless I had pain or trouble. There are times I worry.
Some survivors have told me that the dr.'s prefer not to do routine scans for 2 reasons-- extra radiation and if the patient does develope a questionable symptom the dr. will look back and say "well, you just had a bone scan 4 months ago and it looked clear." They aren't inclined to order a new one.
As a stage one survivor I was wondering if anyone is familiar with this clinical trial
http://clinicaltrials.gov/ct2/show/NCT00878709
it is the Neratinib Clinical Trial.
Thanks.
Hugs.
Love,
Dana
__________________
-Dana-
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Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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