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Old 09-04-2009, 04:51 AM   #5
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Re: Taxotere Carboplatin Herceptin TCH

Lori
I also get my Herceptin every other week...first it was with Taxol, Avastin, now it is with Navelbine....the meds are different because I am metastatic.
Just remember to be kind to yourself, if you are tired, rest, feel free to say NO, and above all, avoid sick people...kinda hard to do with kids I know! Chemo affects everyone differently....or maybe our tolerances are different. My friend was on TC for 8 months and worked everyday...never had a problem. Just remember to take the premeds, the anti nauseas...they have come a long way with avoiding or at least minimizing side effects. You can also email www.heavenlyhats.com and they will send you 6 hats / scarves. After being bald the last 2 years, I found that Anokhi scarves (i found them on the internet) were the softest and most comfy, and Raquel Welch hand tied wigs, if you are a wig person. Go to the American Cancer society first, you can get one for free! Another place that will send you a free silk head wrap for asking is : www.franceluxe.com and click on the good wishes icon in the upper right hand corner.
This was in "O" magazine and these are amazing headware...I think they sell for 75.00...and its free to cancer patients, along with a card and good wishes for a recovery signed by all of them.
Hope this helps......stay strong, this will be behind you before you know it.
Sending a big hug!
__________________
"Be kinder than necessary, for everyone you meet
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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