HER2 Support Group Forums - View Single Post - Lani, propeller heads, and WBR sisters/brothers ~ looking for info and ideas

Darlene Denise · 09-02-2009, 02:25 PM

Brenda: How do they know for sure they are breast cancer mets and not some other type of tumor? There are other tumors that develop there. I am interested in this for you and me. I have a menginoma that we continue to watch and all of my scans say dural met can not be excluded. We have watched it for 18 months but I am told you can not be 100% sure unless it is removed and biopsed.

With the innovative work at, say, University of Pittsburgh where they pioneered the Endonasal Endoscopic procedure I know they work on this area of the brain, any thought that this could be a consideration?

I wasn't thinking the Proton Beam was better, I was just hoping it could treat that area since it stops at the tumor site unlike focalized rads.

I hope you feel all of our concern and it comforts you in some way.

xoxoxoxoDarlene

09-02-2009, 02:25 PM	#30
Darlene Denise Senior Member Join Date: Aug 2008 Location: Virginia Beach, Virginia Posts: 145	Re: Lani, propeller heads, and WBR sisters/brothers ~ looking for info and ideas Brenda: How do they know for sure they are breast cancer mets and not some other type of tumor? There are other tumors that develop there. I am interested in this for you and me. I have a menginoma that we continue to watch and all of my scans say dural met can not be excluded. We have watched it for 18 months but I am told you can not be 100% sure unless it is removed and biopsed. With the innovative work at, say, University of Pittsburgh where they pioneered the Endonasal Endoscopic procedure I know they work on this area of the brain, any thought that this could be a consideration? I wasn't thinking the Proton Beam was better, I was just hoping it could treat that area since it stops at the tumor site unlike focalized rads. I hope you feel all of our concern and it comforts you in some way. xoxoxoxoDarlene __________________ 12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY 01/14/08 2 AC TREATMENTS-NOT WORKING 02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS! 05/12/08 HERCEPTIN EVERY 3 WKS 08/22/08 BRAIN METS! 8 <5MM 09/17/08 CYBERKNIFED BRAIN METS 10/20/08 BRAIN METS SHRINKING 12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT 01/16/09 LIVER REOCUR-XELODA/HERCEPTIN 03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ? 3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN 06/08/09 STUPID BRAIN HAS 3 LESIONS 06/29/09 CYBERKNIFE 07/01/09 LIVER REGRESSION NO NEW METS 07/07/09 TYKERB XELODA HERCEPTIN 11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION 03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!! 03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE 05/21/10 NAVELBINE/HERCEPTIN WORKING! 07/19/10 GOOD BRAIN MRI 08/20/10 LIVER PROGRESSION 09/08/10 TDM1 - NASHVILLE TN 01/10/11 LIVER RESPONDING TO TDM1