HER2 Support Group Forums - View Single Post - Anyone who has had WBR in last year, two, five? Need info...

Beckie · 09-01-2009, 04:47 AM

I had WBR two years ago, just 10 treatments and then targeted radiation. I really didn't have any side effects that I remember. I think it may have added to the chemo brain, but I don't know that for sure. I went to the opthomologist last week because of light sensitivity, and irritation when in a room with a ceiling fan. I was told the radiation damaged my eyes, and they are very dry. They also saw spots in the back that looked like mini strokes, but they have not affected my vision. I think that if you can have targeted radiation without the WBR it may be better, but it really did not interfere with my life.
I hope you never have to do it.
God bless you. Beckie

09-01-2009, 04:47 AM	#5
Beckie Senior Member Join Date: Mar 2007 Location: Norco, Southern California Posts: 53	Re: Anyone who has had WBR in last year, two, five? Need info... I had WBR two years ago, just 10 treatments and then targeted radiation. I really didn't have any side effects that I remember. I think it may have added to the chemo brain, but I don't know that for sure. I went to the opthomologist last week because of light sensitivity, and irritation when in a room with a ceiling fan. I was told the radiation damaged my eyes, and they are very dry. They also saw spots in the back that looked like mini strokes, but they have not affected my vision. I think that if you can have targeted radiation without the WBR it may be better, but it really did not interfere with my life. I hope you never have to do it. God bless you. Beckie __________________ Diagnosed 4/06, age 55 1.1 cm tumor Pre-op x-ray caught lung nodules 6/06 - Stage 4, Her2+++, er/pr- Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones Began taxotere, herceptin, & aredia 7/06 - radiation to lower spine & left shoulder for pain 8/06 - everything smaller 12/06 - stopped taxotere (toe infections) 5/07 - bone mets advancing 6/07 - add navelbine to herceptin & aredia 6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.) 7/07 - WBR, change to Tykerb/Xeloda 9/07 - targeted radiation 10/08 - started navelbine/herceptin 2/09 - brain mets - targeted radiation 5/09 - mets in liver progressing, changed to Ixempra 7/09 - mets in liver still going, to the brain again, on gemzar now 9/09 - gemzar failed, started Doxil today I know Who holds the future, and I know He holds my hand.