HER2 Support Group Forums - View Single Post

Cannon · 08-30-2009, 06:33 AM

I have never seen these stats - and I looked for everything. Also, as others have pointed out, many of these stats are OLD, and do not take into account the widespread use of Herceptin.

The other thing to remember is that even if the cancer recurs - that is not always a death sentence - well at least not a quick one. My sister used to remind me that you just have to live long enough for the next treatment - a sorry thing to be grateful for, but it's true.

I am now 3 yrs out from dx and NED. I was also Stage 3, and I am grateful.

Also, as I like to remind people - for individuals, the stats are either 0% or 100% - so I assume you wil lbe the one with the good outcome!

Best,
Rebecca

08-30-2009, 06:33 AM	#4
Cannon Senior Member Join Date: Oct 2007 Posts: 203	Re: STATS I need help with I have never seen these stats - and I looked for everything. Also, as others have pointed out, many of these stats are OLD, and do not take into account the widespread use of Herceptin. The other thing to remember is that even if the cancer recurs - that is not always a death sentence - well at least not a quick one. My sister used to remind me that you just have to live long enough for the next treatment - a sorry thing to be grateful for, but it's true. I am now 3 yrs out from dx and NED. I was also Stage 3, and I am grateful. Also, as I like to remind people - for individuals, the stats are either 0% or 100% - so I assume you wil lbe the one with the good outcome! Best, Rebecca __________________ Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++ Neoadjuvant A/C 4X Dose Dense 11/06 Bilateral Mastectomy (no choice on the right, my choice on the left) Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07 33 Rads Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier) Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause BRCA negative - lots of cancer in my family survivor of thyroid cancer also have Crohn's disease CT and bone scan say NED as of 5/13 dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35 1/13 Acute pancreatitis - are you kidding me? 9/13 started Humira for Crohn's. starting to have some energy again B12 and Vit D both needed supplementation Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years? 4/14 Kidney stones/blockage/infection - related to Crohn's Disease 5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year 6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.