HER2 Support Group Forums - View Single Post - ~This Sounds So Terrible Of Me, Please Forgive Me

Believe51 · 08-27-2009, 05:36 AM

Just me being me. I really want to take care of this all myself but I have called hospice for further guidance and will speak to OncoMan at some point in the next day or so. I told them to call me and let me know if there was any change with the brain that was bad and needed Decadron, I have 2 and 4 mg here already. I also called and left two other messages. This is a sure fire way for me to get calls of this nature......no calls, this is good for the moment. I will know for sure about the results if they are good. If things have improved for even an iota of good news....I am blasting those great results from Ixempra and miracles.

Meanwhile I remain lost and broken. I used to think that I was selfish wanting him to stay around no matter what....and now I feel selfish seeing him like this. I cannot express. So far too weak for meds and too medicated to enjoy more than an hour here and there. Sometimes I subliminally send messages for him to consume more liquids. When he needs to use the bathroom, it is on the other side of the house and he tends to stay up longer....Sssssh, our secret Sisters. Love you all.>>Marie

08-27-2009, 05:36 AM	#7
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 3,000	Re: ~This Sounds So Terrible Of Me, Please Forgive Me Just me being me. I really want to take care of this all myself but I have called hospice for further guidance and will speak to OncoMan at some point in the next day or so. I told them to call me and let me know if there was any change with the brain that was bad and needed Decadron, I have 2 and 4 mg here already. I also called and left two other messages. This is a sure fire way for me to get calls of this nature......no calls, this is good for the moment. I will know for sure about the results if they are good. If things have improved for even an iota of good news....I am blasting those great results from Ixempra and miracles. Meanwhile I remain lost and broken. I used to think that I was selfish wanting him to stay around no matter what....and now I feel selfish seeing him like this. I cannot express. So far too weak for meds and too medicated to enjoy more than an hour here and there. Sometimes I subliminally send messages for him to consume more liquids. When he needs to use the bathroom, it is on the other side of the house and he tends to stay up longer....Sssssh, our secret Sisters. Love you all.>>Marie __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!