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Re: Long Term Herceptin Users: Mouth Pain? Aching Jaw?
Hey Old Friend! How nice to hear from you Steph! I am glad to hear you didn't deal with jaw pain or mouth pain - it reassures me that maybe it isn't so bad; and I should be able to manage it. It is interesting that you noticed a change after coming off - I am not sure if I even remember what I felt like before Herceptin!
I can tolerate a bit of jaw pain in return for NED from Herceptin.
I am so glad to see you are still NED - way to go!
And Harrie, thank you for the suggestion re clenching - sometimes when my kids trash the house I am sure I clench (!!) but for the most part I don't think that is an issue.
Love Kim from CT
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2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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