HER2 Support Group Forums - View Single Post - Long Term Herceptin Users: Mouth Pain? Aching Jaw?

mamacze · 08-19-2009, 07:22 PM

Hi Brenda,
I am thinking that Herceptin is responsible - although you need to be careful and have your dentist watch you closely as you don't want to end up with a full blown case of necrosis; right?! Mine has been slowly, slowly getting worse with each infusion over the last 8 months - I am a bit worried about necrosis myself. I think I will PM Kim from Calif, if I remember correctly, she is on Herceptin for the long haul as well. Please let me know how you do after your wisdom tooth is taken out (ouch!)
Love Kim from CT

08-19-2009, 07:22 PM	#3
mamacze Senior Member Join Date: Sep 2005 Location: Madison, Connecticut Posts: 639	Re: Long Term Herceptin Users: Mouth Pain? Aching Jaw? Hi Brenda, I am thinking that Herceptin is responsible - although you need to be careful and have your dentist watch you closely as you don't want to end up with a full blown case of necrosis; right?! Mine has been slowly, slowly getting worse with each infusion over the last 8 months - I am a bit worried about necrosis myself. I think I will PM Kim from Calif, if I remember correctly, she is on Herceptin for the long haul as well. Please let me know how you do after your wisdom tooth is taken out (ouch!) Love Kim from CT __________________ 2001 - Stage 0, lumpectomy, radiation, tamoxifen 2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only. 2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle 2011 - Still Herceptin only and NED 2011, June - STOPPED Herceptin and kicked up my heels! 2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable. 2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only Received U of W vaccine clinical "booster" Vaccine 2022 On Herceptin and NED continues - WOOT WOOT!