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suzan w · 08-14-2009, 02:34 PM

Well, Jackie...first of all how would anyone know what a 'variance' of "unknown" is without taking a closer look??? Have you had a pelvic ultrasound (vaginally done with probe) on your ovaries?? I don't see why an unknown variance wouldn't be treated like an unknown 'lump' and have a biopsy? How about a repeat of the test? Seems like it should be either positive or negative...
Maryanne...no other recommendations as far as the BRCA2 result being positive. I have not talked to my oncologist to see if she has any recommendations other than the ovaries and f. tubes taken out. The reason I haven't talked to her yet is that she did not want me to have the BRCA tests done in the first place...and I had to circumvent her to get the testing done!!! Not sure if I ever want to see her again, but when I get over my snit I will probably set up an appointment!!!
xo Suzan

08-14-2009, 02:34 PM	#20
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,747	Re: Surgery scheduled... Well, Jackie...first of all how would anyone know what a 'variance' of "unknown" is without taking a closer look??? Have you had a pelvic ultrasound (vaginally done with probe) on your ovaries?? I don't see why an unknown variance wouldn't be treated like an unknown 'lump' and have a biopsy? How about a repeat of the test? Seems like it should be either positive or negative... Maryanne...no other recommendations as far as the BRCA2 result being positive. I have not talked to my oncologist to see if she has any recommendations other than the ovaries and f. tubes taken out. The reason I haven't talked to her yet is that she did not want me to have the BRCA tests done in the first place...and I had to circumvent her to get the testing done!!! Not sure if I ever want to see her again, but when I get over my snit I will probably set up an appointment!!! xo Suzan __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!