HER2 Support Group Forums - View Single Post - stop the lupron--out with the ovaries

sassy · 08-11-2009, 09:44 PM

I have been on Lupron for almost 4 years for ovarian suppression, allowing me to take an AI, and hopefully gaining some benefit in regard to recurrance.

I recently contacted my former onc who designed my treatment to ask his opinion on this issue. He told me he felt that at this point I should have gotten all of the benefit possible from Lupron and that I could stop the Lupron as long as I had my ovaries removed.

I will talk with my current onc and surgeon concerning the Oophorectomy. I am hoping that going off Lupron will help with the round face and even rounder belly that I have developed!

Any thoughts or experience with Oophorectomy would be greatly appreciated.

08-11-2009, 09:44 PM	#1
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	stop the lupron--out with the ovaries I have been on Lupron for almost 4 years for ovarian suppression, allowing me to take an AI, and hopefully gaining some benefit in regard to recurrance. I recently contacted my former onc who designed my treatment to ask his opinion on this issue. He told me he felt that at this point I should have gotten all of the benefit possible from Lupron and that I could stop the Lupron as long as I had my ovaries removed. I will talk with my current onc and surgeon concerning the Oophorectomy. I am hoping that going off Lupron will help with the round face and even rounder belly that I have developed! Any thoughts or experience with Oophorectomy would be greatly appreciated. __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!