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caya · 08-10-2009, 10:44 AM

Diane,

I live in Toronto and my tumour was tested for ER/PR ( in percentages - I am ER 90%/PR 50%) . I had IHC and then FISH as the IHC was inconclusive. I have the numbers at home, I am out of town right now and I cannot remember the exact numbers for the Her2+.

Other scores I have are the Bloom Richardson score - out of a possible 9 - they test 3 different "characteristics" of the tumour including mitosis - how fast the cancer is growing, etc. Again I have this info at home on my tumour diagnosis report - I will post it all when I get home. I know my tumour(s) ended up being stage 1, grade 2, with mucinous features.

You might want to see if they will send your tumour to Princess Margaret Hospital in Toronto for re-evaluation - # 1 cancer hospital in Canada, rated in the top 5 in the world. Then you would probably be covered and not have to pay anything to send it to the States.

all the best
caya

08-10-2009, 10:44 AM	#2
caya Senior Member Join Date: Jan 2007 Location: Thornhill, Ontario Canada Posts: 2,320	Re: Tumor retest Diane, I live in Toronto and my tumour was tested for ER/PR ( in percentages - I am ER 90%/PR 50%) . I had IHC and then FISH as the IHC was inconclusive. I have the numbers at home, I am out of town right now and I cannot remember the exact numbers for the Her2+. Other scores I have are the Bloom Richardson score - out of a possible 9 - they test 3 different "characteristics" of the tumour including mitosis - how fast the cancer is growing, etc. Again I have this info at home on my tumour diagnosis report - I will post it all when I get home. I know my tumour(s) ended up being stage 1, grade 2, with mucinous features. You might want to see if they will send your tumour to Princess Margaret Hospital in Toronto for re-evaluation - # 1 cancer hospital in Canada, rated in the top 5 in the world. Then you would probably be covered and not have to pay anything to send it to the States. all the best caya __________________ ER90%+/PR 50%+/HER 2+ 1.7 cm and 1.0 cm. Stage 1, grade 2, Node Negative (16 nodes tested) MRM Dec.18/06 3 x FEC, 3 x Taxotere Herceptin - every 3 weeks for a year, finished May 8/08 Tamoxifen - 2 1/2 years Femara - Jan. 1, 2010 - July 18, 2012 BRCA1/BRCA2 Negative Dignosed 10/16/06, age 48 , premenopausal Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so. Reclast infusion January 2012 Oopherectomy October 2013 15 Years NED!!