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Old 07-28-2009, 11:26 PM   #6
harrie
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Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Re: BRCA 1 2...it's Suzan again!!

Suzan,
July 2006, I tested + BRCA2. Oct 2006 I found out I had invasive DCIS. Was small, but I opted for the bilat mastectomy with DIEP reconstruction. If you look at my profile, you will see that I had DICS twice before.
Dec 1006, I had an oophorectomy. It was a simple out-pt procedure.
Annually I have skin examination for melanoma since the risk for that is slightly elevated with the BRCA2.
Also, will have a colonscopy done every 5 yrs instead of the regular 10 yrs.

By the way, if I did not have the bilateral mastectomy, I would be monitered every 6 months with alternating mammograms and MRIs.

My surgical oncologist specialized in genetics. So she was the counselled and tested my sisters, my daughter and myself (actually she counselled me, but i was tested elsewhere)
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara

Last edited by harrie; 07-28-2009 at 11:32 PM..
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