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Becky · 07-28-2009, 06:11 PM

Dear Suzan

I am very sorry about your BRCA 2 status. Although I tested negative, there is ovarian cancer in the family so I had a propholactic ooph 4 years ago. Please go to a BRCA savvy gyn as they have to be more careful in a BSO just in case. I also belong to FORCE - another online bc group for heritary cancers. I joined because I am seriously contemplating bilateral masectomy with immediate reconstruction and the BRCA positive ladies really know the score there as many get the surgeries propholactically. I would go on their site and ask away about BSO - they really know the score and other tests you need to get to watch yourself. They can be found at:

www.facingourrisk.org

Post on the main forum. You need not register to post.
I don't post there often (this is my place) but I am Becky H there. Soccermom is there too as Soccermom.

I know they will be great with all the questions to ask - especially BRCA ones and you can ask their board about recommendations for BRCA savvy doctors (gyn or others) and they'll lead you to some great recommendations.

Love and a hug to you

07-28-2009, 06:11 PM	#2
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: BRCA 1 2...it's Suzan again!! Dear Suzan I am very sorry about your BRCA 2 status. Although I tested negative, there is ovarian cancer in the family so I had a propholactic ooph 4 years ago. Please go to a BRCA savvy gyn as they have to be more careful in a BSO just in case. I also belong to FORCE - another online bc group for heritary cancers. I joined because I am seriously contemplating bilateral masectomy with immediate reconstruction and the BRCA positive ladies really know the score there as many get the surgeries propholactically. I would go on their site and ask away about BSO - they really know the score and other tests you need to get to watch yourself. They can be found at: www.facingourrisk.org Post on the main forum. You need not register to post. I don't post there often (this is my place) but I am Becky H there. Soccermom is there too as Soccermom. I know they will be great with all the questions to ask - especially BRCA ones and you can ask their board about recommendations for BRCA savvy doctors (gyn or others) and they'll lead you to some great recommendations. Love and a hug to you __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"