HER2 Support Group Forums - View Single Post - pet/ct results

Lori R · 07-23-2009, 05:17 AM

Pam,
So sorry to hear that you have to change horses again. But, I am sure we can help you find a good one!!

I agree with Chrisy and Barbara regarding finding a TDM1 trial, results sound impressive. I opted for now to try another Chemo and chose Abraxane.

That said....I am beginning my 3rd cycle of Abraxane tomorrow. It is worth asking your onc about. A recent study (posted here) showed that Abraxane was more effective than taxotere with fewer side effects. As Chrisy said. No premeds, which has been a surprisingly good thing...I forgot how sad steroids made me.

Of course, the key is whether it is working. I haven't had a follow up Pet/CT yet, so I'll let you know. (tumor markers don't register for me) I am thinking my Pet/CT will be in a couple of weeks.

Abraxane has been VERY easy to tolerate. No nail issues, No neuropathy. While my hair has thinned, I haven't lost it. But I must caveat that after taxotere, my hair is so thin I continue to wear a wig and it has the texture of cotton candy. But hey....the few hairs I had are remaining.

Given Joy's struggles on Ixempra, I'd give Abraxane a try.

Hang in there!!! We'll help you choose the best option.

Lots a love....Lori

07-23-2009, 05:17 AM	#10
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Pam, So sorry to hear that you have to change horses again. But, I am sure we can help you find a good one!! I agree with Chrisy and Barbara regarding finding a TDM1 trial, results sound impressive. I opted for now to try another Chemo and chose Abraxane. That said....I am beginning my 3rd cycle of Abraxane tomorrow. It is worth asking your onc about. A recent study (posted here) showed that Abraxane was more effective than taxotere with fewer side effects. As Chrisy said. No premeds, which has been a surprisingly good thing...I forgot how sad steroids made me. Of course, the key is whether it is working. I haven't had a follow up Pet/CT yet, so I'll let you know. (tumor markers don't register for me) I am thinking my Pet/CT will be in a couple of weeks. Abraxane has been VERY easy to tolerate. No nail issues, No neuropathy. While my hair has thinned, I haven't lost it. But I must caveat that after taxotere, my hair is so thin I continue to wear a wig and it has the texture of cotton candy. But hey....the few hairs I had are remaining. Given Joy's struggles on Ixempra, I'd give Abraxane a try. Hang in there!!! We'll help you choose the best option. Lots a love....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)