HER2 Support Group Forums - View Single Post - pet/ct results

Barbara H. · 07-22-2009, 06:10 PM

I saw my oncologist, Dr. Krop, two weeks ago, and he said I could post it on the HER2 website that new trials would be opening up in a few weeks. One will be at the Dana Farber. Perhaps the Dana Farber knows where the other sites will be. I also agree with Christy. Call Genentech. I also have bone mets and had to stay off chemo for many months to become elegable for this trial. I was in quite a bit of pain, and was averaging two hours of sleep a night. Two days after I started this drug I was pain free. I really hope you can get on this trial. I would fight for it. If you can't, at least you know that T-DM1 will eventually be available for you.

Best wishes,
Barbara H.

07-22-2009, 06:10 PM	#9
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	T-dm1 I saw my oncologist, Dr. Krop, two weeks ago, and he said I could post it on the HER2 website that new trials would be opening up in a few weeks. One will be at the Dana Farber. Perhaps the Dana Farber knows where the other sites will be. I also agree with Christy. Call Genentech. I also have bone mets and had to stay off chemo for many months to become elegable for this trial. I was in quite a bit of pain, and was averaging two hours of sleep a night. Two days after I started this drug I was pain free. I really hope you can get on this trial. I would fight for it. If you can't, at least you know that T-DM1 will eventually be available for you. Best wishes, Barbara H.