HER2 Support Group Forums - View Single Post - for Mighty Oak and all those battling brain mets

Believe51 · 07-21-2009, 05:08 PM

Thanks Lani. Unfortunately, Ed cannot get any more radiation for the brain. We do not know if the Ixempra passed the BBB but that treatment has been stopped after 3 infusions. We will start with Temodar with hopes of some protection but it is my understanding that if it works, sometimes it takes a few months, time we do not have if these mets continue to grow. My hopes are that we can 'silence' them. Right now would be the perfect time for a miracle.

No matter what I appreciate the information you supply. What ever may happen with Ed and his future, the brain and bone research will continue for me. This will always be a weak spot and I would like to always keep studying it.

Keep the good stuff flowing Santa, your gifts have helped and continue to help us keep options and hope. Lots of love to you Lani.>>Believe51

07-21-2009, 05:08 PM	#3
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 3,000	Thanks Lani. Unfortunately, Ed cannot get any more radiation for the brain. We do not know if the Ixempra passed the BBB but that treatment has been stopped after 3 infusions. We will start with Temodar with hopes of some protection but it is my understanding that if it works, sometimes it takes a few months, time we do not have if these mets continue to grow. My hopes are that we can 'silence' them. Right now would be the perfect time for a miracle. No matter what I appreciate the information you supply. What ever may happen with Ed and his future, the brain and bone research will continue for me. This will always be a weak spot and I would like to always keep studying it. Keep the good stuff flowing Santa, your gifts have helped and continue to help us keep options and hope. Lots of love to you Lani.>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!