Thread: Crystal Ball?
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Old 07-21-2009, 10:54 AM   #2
Colleens_Husband
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Join Date: Jan 2008
Location: Oregon City
Posts: 856
Please understand that the people on this site are not a representative sample of the HER2 community. Most people survive cancer and move on to other things, such as living to a ripe old age, and just look at their cancer experience in the rear view mirror and they have no desire to deal with it anymore.

Some of the people become pillars of the HER2 community because they have had such a hard time, and these are the people which may scare you. These people are still living and making the most out of every single day of their lives and they should be honored for their bravery and dignity in the face of mortal peril. You could really learn how to live by being around these brave souls. I remain on this site because these individuals constantly amaze me. Well, that and they are a lot of fun to be around.

Others in this community have had the minimum amount of grief, recovered, and have stayed here to offer support out of a sense of community spirit.

Also, you need to be aware of when things are written and when people have had a difficult time. Herceptin changed everything. Information about HER2 which is a couple of years old does not apply to you or your situation. A lot of the scariest cancer stories will not happen in the future because of Herceptin and possibly DM1.

If you are just now dealing with the fears of your cancer, then you may want to go to a cancer counselor who is experienced with post-traumatic stress. I'm not saying that you are crazy or that their is something wrong with you, but there is a reason that you visited this site after such a long time. Exploring why this has become an issue now may improve the quality of your entire life.

Please take excellent care of yourself.

Lee
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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