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Jo,
Glad to see you are tending a little spark of hopefulness.
Living scan to scan is no fun, for sure. And no matter how many times I do it...I still get what I call scanxiety or sometimes temporary inscanity around scan time.
Waiting for results after a scan is the worst part for me. I keep busy and try to not think about it at all until the time comes. That works for me most of the time, although it did backfire once when I set my scanxiety alarm for the time of my dr. appointment and when I showed up, my appt wasn't until the NEXT DAY! I had an immediate meltdown and was a basket case until then.
I guess what I'm saying is, it will always be scary to a degree, you just learn to live with it.
At our initial consultation with Dr. Hope, my husband asked her how could people ever learn to live with the horror of that diagnosis and all that it entails. She told him "you just do". And yes, she was right again...it's not easy but it is part of the ride.
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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