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Old 07-05-2009, 01:42 PM   #6
alicem
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Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
Dear Joan,

I guess I'll chime in as well to give you one more opinion. I did read what Becky said and I agree that dealing with this appropriately means Lumpectomy with radiation OR a Mastectomy. It sounds like your oncologist is wanting a lumpectomy but with NO radiation? Is that because of your previous radiation to your back?

I had a similar experience as Carolyn (West coast girl) in that up until my mastectomy, my mammogram, biopsy, MRI and lumpectomy only showed DCIS. It wasn't until they did the mastectomy (because I only had 1 out of 6 clean margins) did they find a 2 cm tumor. It never showed up anywhere else. I am so grateful that I needed the mastectomy because I would not have known about the invasive tumor otherwise. Myself and about 4 other doctors never felt it either.

You stated . . . "is it crazy to consider reconstruction when it could raise the level of chance for infection and require another surgery?" I'm not sure why reconstruction would raise the chance for infection. I had the mastectomy and the reconstruction done all at the same time. I also had the DIEP reconstruction which used NONE of my muscles. The combined surgery only took a total of 5 hours and I couldn't be happier with the results. Since no muscle was used, the recovery was relatively easy. I had a hysterectomy 2 months earlier (the same day as the lumpectomy) -- that was much harder to recover from.

I got the feeling from my oncologist that he wanted me to try and keep as much of my original body intact as possible, and looking back I think it was more for psychological reasons than anything else. I don't miss the original "girl" at all. I feel like she turned her back on me and I don't miss her at all!!!

I hope some of this helps you in making a decision, but it is your own decision, not mine or anyone else's. Hopefully you will be able to make the one that is right for you.
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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