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suzan w · 07-02-2009, 11:00 AM

Yikes, go away for a few days and miss what's going on! I will admit when I first read Joe's post, I felt sort of like Brenda, guilty for posting good news. But after reading all the replies...some of them several times, I feel OK now! It is so true that we are all like family here. I have come to this board since I first heard the words, "you are Her2 positive, and that is a bad prognosis" (from a not-so-tactful-surgeon!). So I googled Her2 and eventually found this board and joined...that was June 2005. I feel like I know so many of us here although I have only met a few personally. I am closer to you here than to my own sister, and my partner, as far as sharing cancer fears, joys etc. I cry from the pain when one of us is not doing well, and I cry with happiness when we share our success stories. I do not know what I would do without this board! And judging by the response to Joe's post, we all feel personally connected!

07-02-2009, 11:00 AM	#26
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,747	Yikes, go away for a few days and miss what's going on! I will admit when I first read Joe's post, I felt sort of like Brenda, guilty for posting good news. But after reading all the replies...some of them several times, I feel OK now! It is so true that we are all like family here. I have come to this board since I first heard the words, "you are Her2 positive, and that is a bad prognosis" (from a not-so-tactful-surgeon!). So I googled Her2 and eventually found this board and joined...that was June 2005. I feel like I know so many of us here although I have only met a few personally. I am closer to you here than to my own sister, and my partner, as far as sharing cancer fears, joys etc. I cry from the pain when one of us is not doing well, and I cry with happiness when we share our success stories. I do not know what I would do without this board! And judging by the response to Joe's post, we all feel personally connected! __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!