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Barbara H. · 07-01-2009, 06:08 PM

Hi Carolyn,
I'm sorry that you are not able to enter the TDM1 trial at this time. It has worked for me, but it does have its issues. It is not as easy as Herceptin alone. It has lowered my blood counts and caused my liver enzymes to rise. It is a great drug for many, but not for all. I have been on it weekly for almost two years, and would love a vacation from it. However, that is not possible in a trial.

Hopefully, it will be approved next year and it will be successful for you. The good news is that there are also other targeted therapies in our future, and hopefully treatment will become easier.

I understand how sad you must feel right now, but I feel you have a bright future with many possible treatment options.

Best regards,
Barbara H.

07-01-2009, 06:08 PM	#4
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Tdm1 Hi Carolyn, I'm sorry that you are not able to enter the TDM1 trial at this time. It has worked for me, but it does have its issues. It is not as easy as Herceptin alone. It has lowered my blood counts and caused my liver enzymes to rise. It is a great drug for many, but not for all. I have been on it weekly for almost two years, and would love a vacation from it. However, that is not possible in a trial. Hopefully, it will be approved next year and it will be successful for you. The good news is that there are also other targeted therapies in our future, and hopefully treatment will become easier. I understand how sad you must feel right now, but I feel you have a bright future with many possible treatment options. Best regards, Barbara H.