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Hi Jackie,
Thank you for your reply. None of my friends get this part of my life and I think it would kill my parents if they knew the truth. Anyway, my doctor does have plans for me it is just that we both agreed that "ideally" this would be the time for TDM1. She encouraged me to do what I could to try to get TDM1 and she has done her part. But, she also told me that without expanded access, I would have to be able to qualify for a trial that was open (to heavily pretreated patients like me) when I show progression. Timing is a big part of getting into the trials. Everyone has tried so hard for me but the rules of the game just have not worked in my favor so far with TDM1. I had my heart set on getting into this trial. All of my research tells me that it is the next "best" step for me. I refused to believe that I would not get in one way or another. So, this is just me preparing to give up a dream... my doctor has done everything she could and can do for me. Now we have to consider the remaining chemos and she believes that Doxil is the next best thing for me.
That said, I guess that there is a small chance that the scans will not show progression that requires immediate action and I may still be able to wait. I am just really upset right now and don't have anywhere else to go but here.
Love, Hope, Peace, Carolyn
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