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Old 07-01-2009, 05:51 AM   #1
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
Abby - I really am trying to understand your position, but I'm sorry I don't. You've talked a lot about what doesn't work for you: the mind/body connection language, 'I'll pray for you' comments etc. as not being "honest reality' (my words not yours), I get that doesn't connect with you as real or helpful. That's fine and I'm glad you can express that doesn't work for you. But I don't know what would be meaningful and helpful for you that you'd like to see discussed in its stead. Help me understand. As others have said, I think the intent is for this to be an open forum where everyone and their opinions are accepted and honored - and we are able to share our realities and truths without being criticized - different paths. I'm sure you are not alone in your beliefs regarding these things nor is Andi in hers. And how many hundreds of us are on this site (Joe? I have no idea!) No two of us are alike. As another has said, take what is helpful here, ignore what isn't.

"I'll pray for you" does sound like a lame inept thing to say at times when the news is bad bad bad and terrifying and we well know the facts. I could say something blunt like "your not going to beat those odds" but the person already knows the score her/himself - & I - or any of us don't know what the future will hold anyway, so all I can do is pray.

I didn't watch the Farah story you mentioned, but I'm curious - I'll see if I can find it on the internet.

Andi - I admire your positive spirit and stories of inspiration.

Peace and acceptance to all here. Pam
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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