HER2 Support Group Forums - View Single Post - ~Dr Burstein (DFCI) Meets The Mighty Oak!~

Believe51 · 06-25-2009, 07:39 PM

Girls, I am really having second thoughts about dropping the Ixempra. OncoMan will look at the TM in the morning and we are going to take it from there. You all know I struggled back and forth about the reintroduction of Herceptin. Worst case scenario it will be the Ixempra with the additions until we can decide the regime. This would only happen if the TM went down in numbers, any drop would be encouraging. If the CEA drops I will almost know, not really for sure, but I will almost know that this reflects the passing of this drug through the BBB. That number has proven in his case to represent brain and bone activity. His body appears to be controllable and nothing as far as we can tell, in any organs. Body has been well receptive with most treatments.If marker drops, then I will keep and then add to magic recipe.

Either way Ed will take his Emend and trudge forward. He amazes me ladies, I look at him and see he is still truly embracing life, never complaining. Do not get us wrong, we are rather scared with this news but I think we can do what we need to do in the next few weeks. But as scared as we may be, we are more full of hope and anticipation. Tomorrow begins a new fight, a fight we are claiming today.

Wait and see the damage he does!! There is even a stronger look of fight behind those eyes than ever before. You go Mighty Oak, let us resume where we left off. I love you.>>Believe51

06-25-2009, 07:39 PM	#23
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Girls, I am really having second thoughts about dropping the Ixempra. OncoMan will look at the TM in the morning and we are going to take it from there. You all know I struggled back and forth about the reintroduction of Herceptin. Worst case scenario it will be the Ixempra with the additions until we can decide the regime. This would only happen if the TM went down in numbers, any drop would be encouraging. If the CEA drops I will almost know, not really for sure, but I will almost know that this reflects the passing of this drug through the BBB. That number has proven in his case to represent brain and bone activity. His body appears to be controllable and nothing as far as we can tell, in any organs. Body has been well receptive with most treatments.If marker drops, then I will keep and then add to magic recipe. Either way Ed will take his Emend and trudge forward. He amazes me ladies, I look at him and see he is still truly embracing life, never complaining. Do not get us wrong, we are rather scared with this news but I think we can do what we need to do in the next few weeks. But as scared as we may be, we are more full of hope and anticipation. Tomorrow begins a new fight, a fight we are claiming today. Wait and see the damage he does!! There is even a stronger look of fight behind those eyes than ever before. You go Mighty Oak, let us resume where we left off. I love you.>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!