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Thinking of you and praying for you, Darita.
My two cents - have you tried Tykerb/Xeloda? Was it intolerable? If you haven't tried it, I would suggest you consider it. I am on both and have been able to manage the side effects pretty well. I found my proper dose that I could tolerate and don't feel that my QOL has been affected much. I am hoping and praying that the T/X combo is reaching my brain and doing its goodness. As you can see from my stats below, so far, so good. Praying the same for you. Definitely talk to your doctor about this possibility if you haven't already. You can manage this! And you can get rid of those brain mets! I KNOW IT!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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