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Old 06-22-2009, 11:44 AM   #3
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
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Dear Carolyn,

I saw your call for inspiration and you pushed my buttons. I would urge you to please read my thread CAUTIOUS REMISSION along LIFE-CHANGING BOOKS TO READ thread and of course my signature which tells my story.

Of course Life is a roller coaster ride and once you add bc, it's like uber ups and downs. My day, all this time later, is filled w/me trying to become One With The Universe, to acknowledge my stunningly scared to death feelings and their horrid what if scenarios that beg to play out in my head all day.

There can be none of that. It will only drag me down, I know. Olympic gold medalists do not linger in such negativity. The VICTORS in Life are the ones who reprogram their mental chatter and find mantra-like phrases to bounce around their heads, into their life force and course through their bodies all day, instead. Not an easy task, I am well aware, but so worth the effort. And, it does get easier w/practice, like all things.

Stay STRONG, BRAVE AND DETERMINED. Keep putting one foot in front of the other and moving forward. One step at a time. One at a time. And, when necessary, one hour at a time.

Be gentle with yourself. Pamper yourself. You've been through so much. And done it with grace. Good for you. Naturally, you have your moments. You are human. You're a radiant Soul, but you are presently quite human as well.

Also, my husband was a pretty huge mess though strong for me when I needed him to be. He needed to feel he could help, which of course he couldn't bc wise. So he drove me to every appointment, assimilated all information and acted as my personal tape recorder, repeating and explaining what I/we'd just heard. My brain would seize up at certain points and hear nothing after that. He marketed for me, he went to the dry cleaner, the drug store, did the laundry. These tasks delighted him as it was a way for him to participate. He dealt with the insurance company -- all this allowing me to focus on me and on HEALING!

So, Carolyn, I suggest you learn to live AS IF. (I describe this wonderful new way of being for myself someplace within the threads I mentioned above.)

With love,
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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