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Hi Mena,
So sorry you have received the invitation to our little group. You are clearly a serious fighter! I can only imagine how shocking it was to you to hear the new diagnosis of Stage IV! If only Herceptin had been given to Stage 1 patients when you were lst dx'd. It's like Tykerb for us presently. We would like to protect our brains prophylactically with Tykerb, but it is not approved for the adjuvent setting. Maddening!
This site is wonderful for searching for new treatment opportunities. Hang in there, Mena! Please keep us posted on your progress! Healing prayers!
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Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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