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Marie,
I just extended Genentech a professional courtesy. As we are considered and soon you will be: patient advocates. As such, you no longer are bound by HIPPA restrictions and are considered healthcare professionals.
We are then allowed to freely discuss patients, drugs and treatments with the pharmaceutical companies and many times we become aware of confidential data not generally released to the public.
In order to preserve these ties, we generally agree to their requests. Keep in mind. If the HER2 Support Group were to get sued, all we could lose would be our assets, and could easily form a new corporation and be online the next day. The pharmaceutical companies have a lot more to lose.
I also must add, we have never been pressured by any pharmaceutical company to favor their products over their competitors or to change any content on our website.
Write some letters on our behalf. I need a $ 1 million endowment for 10 years.
Warmest Regards
Joe
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