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Pam,
We share the exact same concerns about what happens when we receive a respite from constant treatment while on disability.
I've tried contacting multiple "offical" sources; American Cancer Society, Insurance broker but could not locate anyone with "real world" experience.
I will be back at my Drs next week and I'll push the nurses about what kind of push back they've received. I've been tentative in my questioning at the Drs. but will push harder.
I'm with ya sister....concerned about relenquishing my job and then when it is too late have an insurance company pull the rug out. (sorry....just not willing to put my trust in the benevolence of a large insurance company with revenue objectives)
Thank you for starting this post and I am hoping someone who has been down this road can help.
Lori
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2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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