HER2 Support Group Forums - View Single Post - Scans tomorrow --

Andrea Barnett Budin · 06-17-2009, 03:49 PM

Hello twin Sister, Steph!

I just saw this. I am going tomorrow for my CT scans. I too am holding my breath and trying not to grind my teeth, as I flap untethered out here too.

Been 6 mnths since last CTs, which showed me stable. Been off Vit H since 7/24/08! Wow! I love it out here in Freedom, despite my clenched teeth.

I await your results, which I trust and pray are STABLE!

My Tumor Markers are now under control, by CA 27.29 and the Elisa Test (Her2 Serum Blood test). I am having my TM's checked again on the 29th. And my diagnostic mammog/sono on the 25th. Busy trying to act cool.

With love to you. I so relate... BIG hugs,
Andi

06-17-2009, 03:49 PM	#28
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	I'm sitting here waiting... Hello twin Sister, Steph! I just saw this. I am going tomorrow for my CT scans. I too am holding my breath and trying not to grind my teeth, as I flap untethered out here too. Been 6 mnths since last CTs, which showed me stable. Been off Vit H since 7/24/08! Wow! I love it out here in Freedom, despite my clenched teeth. I await your results, which I trust and pray are STABLE! My Tumor Markers are now under control, by CA 27.29 and the Elisa Test (Her2 Serum Blood test). I am having my TM's checked again on the 29th. And my diagnostic mammog/sono on the 25th. Busy trying to act cool. With love to you. I so relate... BIG hugs, Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...