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Jackie07 · 06-02-2009, 07:18 PM

Lisa,

If your doctor has scheduled a CT in July, I would wait till then. Because a CT right now will still be inconclusive - that things could still be too small to show, if there's any - and I doubt it's anything more than a common upper repiratory infection.

Doctors usually do a three months follow-up which is standard procedure. Also, different scans reveal different things. My last CT showed somthing and they did an ultrasound to confirm that it is not cancer in the liver but just liver hemangioma (some blood vessal clusters which did not show on ultrasound.)

My oncologist ignored my concerns about my liver, so I went to my family doctor who ordered CT scan and then ultrasound. Then the oncologist read the scan as well and his nurse practioner called me about the result. And everybody's relieved.

If you are really worried, I would suggest to get a second opinion and/or to have the test result re-evaluated. I know the feelings of being afraid to give people the 'hypocondriac' impression. But hey, I just had my gene test done and they did find some interesting stuff in me related to the BRCA stuff (a variant so rare that I was asked if my parents' blood sample can be collected for a free analysis.)

You are just over the shock of a cancer diagnosis and a mastectomy. I solute you for your 'coolness' and quick action to gather information before making your next decision. One round of chemo is not going to hurt anything. And if your heart is good, 1 year worth of Herceptin is your best defense against future recurrence.

06-02-2009, 07:18 PM	#4
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Lisa, If your doctor has scheduled a CT in July, I would wait till then. Because a CT right now will still be inconclusive - that things could still be too small to show, if there's any - and I doubt it's anything more than a common upper repiratory infection. Doctors usually do a three months follow-up which is standard procedure. Also, different scans reveal different things. My last CT showed somthing and they did an ultrasound to confirm that it is not cancer in the liver but just liver hemangioma (some blood vessal clusters which did not show on ultrasound.) My oncologist ignored my concerns about my liver, so I went to my family doctor who ordered CT scan and then ultrasound. Then the oncologist read the scan as well and his nurse practioner called me about the result. And everybody's relieved. If you are really worried, I would suggest to get a second opinion and/or to have the test result re-evaluated. I know the feelings of being afraid to give people the 'hypocondriac' impression. But hey, I just had my gene test done and they did find some interesting stuff in me related to the BRCA stuff (a variant so rare that I was asked if my parents' blood sample can be collected for a free analysis.) You are just over the shock of a cancer diagnosis and a mastectomy. I solute you for your 'coolness' and quick action to gather information before making your next decision. One round of chemo is not going to hurt anything. And if your heart is good, 1 year worth of Herceptin is your best defense against future recurrence. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 06-02-2009 at 07:28 PM..