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Wow, that's a great question. I guess I've seen it some - and yes, you definitely find out who your real friends are. My experience has been, with the people who I might feel "write me off" is that really, THEY just can't deal with the whole thing. And so they keep you at arms length, or even turn away completely, to protect themselves from their own fears. I've also experienced the opposite - people who can't, or won't acknowledge that I am still and will always be fighting this disease. I look normal and act (for me) normal, therefore I must be fine, right??? Maybe it's the same thing - they don't want to talk about it because they can't handle it. Or, because they WANT me to be fine. But that said, my circle got smaller and the ones who matter have already shown me their colors when I was first dx with mets. So, I know there are many who will stand up with me despite all our fears. Bill, just want to add my jeers to Nikki's cousin - she must have some really deep fears and lack of faith to have done that.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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