HER2 Support Group Forums - View Single Post - ~Rich66~Update on Mom If You have A Moment

Believe51 · 05-05-2009, 12:03 PM

Rich, this battle is just full of so many circumstances so keep asking those questions and 'see the medi-cop, be the medi-cop'! Any intervention we can assist we should and in the start I did feel very demanding and paranoid, but within reason. Nudge if you feel you want to and never look back. Please DO overlook at times like this that we think we may have dropped the ball. Recently Ed had a hold up in a petscan we were waiting for an approval on that should have never happened. Luckily for us he had a bone scan and spent time gaining some weight in between researching. I know you are not beating yourself up about this but wanted to just mention it to you.

I will await the results of Mom's testing and know someway, somehow it will help in any decisions she may have to make. I am amazed by her sheer beauty and fight, and I must say I have sort of adopted her in a sense. So please know she is constantly coming into my mind. Continued prayers for Mom and Dad.

As for Dad, well I am sometimes disappointed in the way some descibe the situation to our loved ones and even the patient in the next bed. You are right in feeling that there are more gentle ways to address that list of his. I have found out that it is my job as Marie, to jump in and supply what I watch and feel is lacking in the hard truths. I am so sorry that he had to be kicked in the knees but I know you will try to help him past that. Dad too is an amazing fighter and I can see where you get it from with these special people, what a beautiful family you have.

I listen to you talk and wish I could empty that full plate of yours, I know you too are full. But this is the story of Love and as your friend I am so blessed to be able to hear your story and learn from it. Always in my thoughts and thanks again for keeping us posted on what is happening in this journey and for helping us on ours.>>Believe51

PS: Did you ever get the results of the ear wax sample you sent out?? Haha..You are one silly person.

Gotta go back and pray for Donna's Mom.

05-05-2009, 12:03 PM	#95
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 3,000	Rich, this battle is just full of so many circumstances so keep asking those questions and 'see the medi-cop, be the medi-cop'! Any intervention we can assist we should and in the start I did feel very demanding and paranoid, but within reason. Nudge if you feel you want to and never look back. Please DO overlook at times like this that we think we may have dropped the ball. Recently Ed had a hold up in a petscan we were waiting for an approval on that should have never happened. Luckily for us he had a bone scan and spent time gaining some weight in between researching. I know you are not beating yourself up about this but wanted to just mention it to you. I will await the results of Mom's testing and know someway, somehow it will help in any decisions she may have to make. I am amazed by her sheer beauty and fight, and I must say I have sort of adopted her in a sense. So please know she is constantly coming into my mind. Continued prayers for Mom and Dad. As for Dad, well I am sometimes disappointed in the way some descibe the situation to our loved ones and even the patient in the next bed. You are right in feeling that there are more gentle ways to address that list of his. I have found out that it is my job as Marie, to jump in and supply what I watch and feel is lacking in the hard truths. I am so sorry that he had to be kicked in the knees but I know you will try to help him past that. Dad too is an amazing fighter and I can see where you get it from with these special people, what a beautiful family you have. I listen to you talk and wish I could empty that full plate of yours, I know you too are full. But this is the story of Love and as your friend I am so blessed to be able to hear your story and learn from it. Always in my thoughts and thanks again for keeping us posted on what is happening in this journey and for helping us on ours.>>Believe51 PS: Did you ever get the results of the ear wax sample you sent out?? Haha..You are one silly person. Gotta go back and pray for Donna's Mom. __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!