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Old 04-28-2009, 07:24 PM   #2
Barbara2
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Join Date: Sep 2005
Location: South Dakota.
Posts: 621
Mary Murphy, could you please share a bit more info about your cancer? Notice the cancer history that many people use below their signature. That is there to help the other members know the background and treatment of the cancer, which is important for the reader to know in order to share thoughts and suggestions that may be helpful to the person who is posting the question.

When was your cancer diagnosed? What treatment did you receive and how much? You mentioned chemo. What kind? Did you have raditaion?...lumpectomy?...Er+? Pr+? How are you doing now?

Do you live in the United States? I believe many oncs would be willing to give "late" herceptin because it has proven to be of benefit even in that setting.

Do you not get blood work done even during your yearly visit? Many oncs do not want to do scans if there are no symptoms to warrant having tests and scans.

About a month or so ago, one of the members posted a questiion about "late herceptin." You may want to read that, or look for the topic under "search" on the bar at the top of this page becaused this topic has been discussed from time to time. Hope this helps.
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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