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Ellie, I don't have IBC, but I have had Taxol and Taxotere and herceptin and more! You can do the taxanes, girl! Get determined to fight for YOU! I think when they don't know what to do next, it's them getting discouraged and passing it on to us! Just say a HUGE, "No Thank You" and continue to know that no one on the planet deserves better care or attention. You're important alright!!!! Very important! When you get discouraged think about all of us (tons of us) standing behind you holding you up and cheering outrageously! You can do this! ma
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MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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