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Wow, what can I say? I am overwhelmed with the outpouring of encouragement and support. You ladies are AMAZING! You continue to inspire and fill me with hope. Thank you SO MUCH for your valuable advice; sharing your personal knowledge and experience. I am armed with so much information.
My onc and the first radiation oncologist I spoke with are pushing for WBR but I am still hopeful we can do Gamma or Cyber Knife. I've got an appointment at UCSF tomorrow and hope to get an appointment at Stanford later this week. Still don't know what I'm going to do but I do know how its going to turn out - I will get rid of these things!
I will keep you all posted. Thank you again. Know that you are all in my thoughts and prayers every day.
With love,
Courtney
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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