HER2 Support Group Forums - View Single Post - Feeling so desperate

vickie h · 03-20-2009, 10:54 AM

Missy,
Please don't be too frightened, though I know that is easier said than done. I am on Navelbine and have been on it before. It was the first time I was ever NED, so it is a great treatment and very easily tolerated. There was a bit of hair loss, but I kept most of my hair and never had any nausea, etc. My energy levels were quite good, also. I think it is an excellent choice for you and would also research whether a resection is a possiblity for you. I have not had liver mets, but I have been in chemo for over 5 years now, non-stop except for a couple of 6 week breaks. I was only NED once (On Navelbine) but there continues to be more options added all the time.
I know how fear takes over when this happens. Breath deep and keep up the fight, you're going to be just fine. I am praying for you, sweet sister, and we are all here compassionately reaching out to form a protective blanket of love around you. We love you very much, Vickie

03-20-2009, 10:54 AM	#7
vickie h Senior Member Join Date: Jun 2006 Location: san luis obispo, ca Posts: 1,150	Missy, Please don't be too frightened, though I know that is easier said than done. I am on Navelbine and have been on it before. It was the first time I was ever NED, so it is a great treatment and very easily tolerated. There was a bit of hair loss, but I kept most of my hair and never had any nausea, etc. My energy levels were quite good, also. I think it is an excellent choice for you and would also research whether a resection is a possiblity for you. I have not had liver mets, but I have been in chemo for over 5 years now, non-stop except for a couple of 6 week breaks. I was only NED once (On Navelbine) but there continues to be more options added all the time. I know how fear takes over when this happens. Breath deep and keep up the fight, you're going to be just fine. I am praying for you, sweet sister, and we are all here compassionately reaching out to form a protective blanket of love around you. We love you very much, Vickie __________________ Love and Hugs, Vickie Life's not about waiting for the storm to pass, It's about learning to dance in the rain. Feb 04 IBC IIIC/IV er-/pr- her2+++ 3/04 TCH X4 7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads 11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos. 8/ 06 PET mets lymphs, neck 9/ 06 Navelbine/herceptin 11/ 06 PET NED 2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb 2/ 08 Tykerb failed. Doxil /Herceptin 6 months 8/08 PET skin mets, 8/08 Abraxane/Avastin 11/ 08 PET prog., skin mets 1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone 2/09 off Ixempra/Xeloda 3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed. 8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.