HER2 Support Group Forums - View Single Post - No Tykerb in the UK, calling all the UK Her2 people

tricia keegan · 03-13-2009, 12:58 PM

Fullofbeans,

I was shocked at this. I'm quite close to you in Ireland and we've had Tykerb here also for the past couple of years. One of the ladies from the site here was able to avail of it when she moved here from Scotland. I think you need to certainly get some support from other cancer survivors/patients in the UK.
I don't have much in terms of practical advice but do have a suggestion. I post infrequently on a UK site which is quite busy,it's for all cancer's not just breast cancer. You may be able to drum up some support from other's there as there are quite a few breast cancer patients currently posting. The link is below-
www.cancerbuddiesnetwork.org
(I'm sure thats the correct link but if you have problems just contact me and I'll send on to you)..

03-13-2009, 12:58 PM	#16
tricia keegan Senior Member Join Date: Nov 2005 Location: Ireland Posts: 3,463	Fullofbeans, I was shocked at this. I'm quite close to you in Ireland and we've had Tykerb here also for the past couple of years. One of the ladies from the site here was able to avail of it when she moved here from Scotland. I think you need to certainly get some support from other cancer survivors/patients in the UK. I don't have much in terms of practical advice but do have a suggestion. I post infrequently on a UK site which is quite busy,it's for all cancer's not just breast cancer. You may be able to drum up some support from other's there as there are quite a few breast cancer patients currently posting. The link is below- www.cancerbuddiesnetwork.org (I'm sure thats the correct link but if you have problems just contact me and I'll send on to you).. __________________ Tricia Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr Rads x 36 ..oophorectomy August '06 Currently taking Arimidex.. June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density. Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc. 2014 Normal Dexa scan 2018 Mammo all clear, still NED!