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Off course it is about money it always is, but why then do the charities response to it is that they need to carry out more trials?
I agree with Elly it is very arrogant and from the charity point of view a really poor response.
Why do they not simply say that the patients are not worth the money, call a cat a cat.. If the charities agree that advance patients'time on earth are not worth the cost then they should state it honestly too as oppose to be highly patronising finishing their statement with "ask your doctor" it is painful to read.
Anyway does tyverk cost that much more than Herceptin? As well as Tyverk there is also the MAJOR ISSUE of cyber knife been disallowed.. we have seen that this operation has saved lives here with quite a few of us never recurring or many years later..
PS:Well done for writing to 2 MPs.
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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