Full of Beans
I understand that Herceptin got approved in Canada when a Her2+ BC patient went to the press, and basically said that Herceptin was a proven drug and would save her life... this was front page news... and Herceptin was approved shortly after that. Not sure of the official date, but I believe in 2005 sometime.
Perhaps a group of you could call a press conference, maybe get your UK Breast Cancer Foundation involved, some oncs. etc.
Wish I could help more, sending you the best from Canada.
all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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