No Tykerb in the UK, calling all the UK Her2 people
It is the draft decision from NICE to which an apeal can be made.. Any idea anyone?
http://www.nelm.nhs.uk/en/NeLM-Area/...Determination/
We cannot count on any NGO to help us check the pathetic answer from breakthough (the only BC organisation that is meant to be about science):
http://www.breakthrough.org.uk/who_w...nib_mar09.html
Now I am really fed up with comments about the fact that it is because it is a national health service. FYI most western countries EU and Canada have such a system but have tykerb.. so please do politic somewhere else!!! and do not dilute our debate and take a ride on it!!
Anyhow for all of us concerned if anyone wants to take the lead maybe we should have a petition ? any good advocate amongst us ? (I am more of a research person myself). By the way the final decision is to be taken on 27 March, so we need to hurry.
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
Last edited by fullofbeans; 03-11-2009 at 07:24 PM..
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