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Ibc
Hi Ellie,
Chiming in to welcome you to our site. I am so happy that you are seeking a second opinion, especially with IBC. There isn't a lot of time to wait between treatments and our kind of cancer can spread like wild fire. I am not in any way suggesting that you are not probably doing just fine, but I do worry that so many Oncs out there do not understand IBC and it is so often misdiagnosed. I feel a lot better that you are being pro-active and going for that second opinion. I'm praying that there is an Onc who specializes in this type, or at least has treated IBC and knows the protocols. Much love and support to you. Please let us know how you're doing. I'm sending you cyber hugs, prayers and much, much love, Vickie
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Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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