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Believe51 · 02-25-2009, 10:49 AM

Vickie, thanks for the honesty. For us we are concerned with the fact that he was already on Xeloda with Tykerb and he failed. Even with Tykerb in another combo I find a tad scary. Of course we want to make the right decision because the cancer is getting more aggressive. Funny how that sounds, 'more aggressive', uggh!

I want to have that brain protected since I am afraid of the chance of more brain issues. I mean, how many times can one undergo the Gamma? Those salted areas of the brain (mets) was a miracle in itself to see flee. Just do not want to press our luck. I also want to keep this away from the organs.

We are comfortable waiting for some added weight and a healed throat before starting chemo. There is no right answer but by researching and customizing treatment we are confident we can buy some more time. I feel it is too early for clinical trials but never dispatch that from our options. Open to everything at this point.

We are not giving up, we are gearing up. We are ready for war once again! In the mean time, a clean brain with no new mets means we are granted more time. Time that allows us to live and fight another day. Thanks for the reply, your friendship is one of my greatest gifts!>>Believe51

02-25-2009, 10:49 AM	#3
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Vickie, thanks for the honesty. For us we are concerned with the fact that he was already on Xeloda with Tykerb and he failed. Even with Tykerb in another combo I find a tad scary. Of course we want to make the right decision because the cancer is getting more aggressive. Funny how that sounds, 'more aggressive', uggh! I want to have that brain protected since I am afraid of the chance of more brain issues. I mean, how many times can one undergo the Gamma? Those salted areas of the brain (mets) was a miracle in itself to see flee. Just do not want to press our luck. I also want to keep this away from the organs. We are comfortable waiting for some added weight and a healed throat before starting chemo. There is no right answer but by researching and customizing treatment we are confident we can buy some more time. I feel it is too early for clinical trials but never dispatch that from our options. Open to everything at this point. We are not giving up, we are gearing up. We are ready for war once again! In the mean time, a clean brain with no new mets means we are granted more time. Time that allows us to live and fight another day. Thanks for the reply, your friendship is one of my greatest gifts!>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!