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vickie h · 02-25-2009, 10:22 AM

Hi Marie,
I'm currently on Ixempra and Xeloda. 3 weeks between Ixempra infusions and every other week for Xeloda (pills). I have had 2 treatments and they are not seeing the results they were hoping for. My next visit with my main Onc is next week and they will decide then whether to continue or to look for something else. I have been on the phone with MD Anderson all morning and they want me to fly out there next week to begin a battery of tests. I will be staying there for 11 to 14 days.
I wish I had better news on the Ixempra for you, and hopefully it will work for Ed much better than it has for me. My Onc said there was a 10% chance of effectiveness when I started. My problem is so many skin mets at this point.
The side effects have been quite a bit of nausea, hair loss (my 4th time), AND fatigue (low red and white counts, also).
I will be praying that Ed has a better time with the Ixempra if he goes on it. There are several other people here that were on Ixempra but i can't seem to remember their names at this point. I will know a lot more about it after my trip to MD Anderson. I will be seeing a IBC specialist there, The top specialist for our kind of cancer in the world.
Good luck to you, sweet sister. Let me know if I can answer any more questions for you, or if there is anything I CAN DO for you or Ed.
Much love, Vickie

02-25-2009, 10:22 AM	#2
vickie h Senior Member Join Date: Jun 2006 Location: san luis obispo, ca Posts: 1,150	Hi Marie, I'm currently on Ixempra and Xeloda. 3 weeks between Ixempra infusions and every other week for Xeloda (pills). I have had 2 treatments and they are not seeing the results they were hoping for. My next visit with my main Onc is next week and they will decide then whether to continue or to look for something else. I have been on the phone with MD Anderson all morning and they want me to fly out there next week to begin a battery of tests. I will be staying there for 11 to 14 days. I wish I had better news on the Ixempra for you, and hopefully it will work for Ed much better than it has for me. My Onc said there was a 10% chance of effectiveness when I started. My problem is so many skin mets at this point. The side effects have been quite a bit of nausea, hair loss (my 4th time), AND fatigue (low red and white counts, also). I will be praying that Ed has a better time with the Ixempra if he goes on it. There are several other people here that were on Ixempra but i can't seem to remember their names at this point. I will know a lot more about it after my trip to MD Anderson. I will be seeing a IBC specialist there, The top specialist for our kind of cancer in the world. Good luck to you, sweet sister. Let me know if I can answer any more questions for you, or if there is anything I CAN DO for you or Ed. Much love, Vickie __________________ Love and Hugs, Vickie Life's not about waiting for the storm to pass, It's about learning to dance in the rain. Feb 04 IBC IIIC/IV er-/pr- her2+++ 3/04 TCH X4 7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads 11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos. 8/ 06 PET mets lymphs, neck 9/ 06 Navelbine/herceptin 11/ 06 PET NED 2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb 2/ 08 Tykerb failed. Doxil /Herceptin 6 months 8/08 PET skin mets, 8/08 Abraxane/Avastin 11/ 08 PET prog., skin mets 1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone 2/09 off Ixempra/Xeloda 3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed. 8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.