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Since I didn't find out I was BRCA2 positive until just before this past IDCIS, if I had to do anything differently, I would have been genetically tested the first time I had DCIS in my early 40s.
I wish I had found out about this site at the time I first found out I was HER2+. It would have given me much needed information and support. I didn't find out until after I started chemo.
What I would not have done any differently is this:
Exercise. I exercised a lot before my CA, during chemo I did what I could, and after I continued on a good program. I did not gain any additional wt by the end of my treatments.
Wig: I absolutely LOVED my real hair wig. I got it for a good price (I think around $600) and it look identical to my real hair. It was comfortable and NOT ONE person knew it was a wig.
CHEMO: TCH, I am glad I did it! Peace of mind for me. I tolerated it very well and feel 100% recovered.
HarrieCanarie
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*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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