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Becky · 02-16-2009, 07:16 PM

I also was diagnosed prior to adjuvant Herceptin. It became available when I was 4 months past my last chemo. My current onc (at that time) would not give me Herceptin but Sloan Kettering would but you had to bring your chemo records to prove that you were 6 months or less from your last chemo. So...I had to get a full copy of my chart, which I did. The first page was a letter from my current onc thanking the surgeon for the referral. The letter said, although she is only Stage2A, she is Her2+, PR negative and moderately ER+. After AC followed by Taxol and rads, I will put her on Tamoxifen "for as much good as that will do". Her prognosis is very poor but I will follow her closely.

I took things into my own hands (long story) and I am still here - going onto 5 years. The only poor prognosis was my first onc whom I promptly replaced!

Going back to my '70's upbringing - don't let the turkeys get you down.

Move forward with your life and your wishes to expand your family or whatever else you want to do or achieve.

Peace

02-16-2009, 07:16 PM	#8
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	I also was diagnosed prior to adjuvant Herceptin. It became available when I was 4 months past my last chemo. My current onc (at that time) would not give me Herceptin but Sloan Kettering would but you had to bring your chemo records to prove that you were 6 months or less from your last chemo. So...I had to get a full copy of my chart, which I did. The first page was a letter from my current onc thanking the surgeon for the referral. The letter said, although she is only Stage2A, she is Her2+, PR negative and moderately ER+. After AC followed by Taxol and rads, I will put her on Tamoxifen "for as much good as that will do". Her prognosis is very poor but I will follow her closely. I took things into my own hands (long story) and I am still here - going onto 5 years. The only poor prognosis was my first onc whom I promptly replaced! Going back to my '70's upbringing - don't let the turkeys get you down. Move forward with your life and your wishes to expand your family or whatever else you want to do or achieve. Peace __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"