Thread: Darn
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Old 02-13-2009, 05:29 PM   #5
vickie h
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Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
HI Barb,

I think it's smart to seek other opinions and if MD Anderson can get you in, on any basis, I would go. Once there (your foot in the door) things could change. They are reknowned around the world for their research and work with IBC patients. Sometimes we are led to places that change our lives. If it isn't too time consuming or expensive for you, I'm rooting for you to go there and seek other options. You can still get another opinion elsewhere and go to Anderson. Whatever you decide, I will be praying for you and keeping you in my heart. Please let me know how you are doing and what your decision is.
Much love, Vickie
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Love and Hugs, Vickie

Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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