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Old 02-13-2009, 03:03 PM   #5
CourtneyL
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Join Date: Aug 2008
Location: San Francisco
Posts: 260
Complementary Treatments for BC Survivors in Hawaii, Santa Cruz and SF Bay Area

Hello Beautiful Hawaiian Ladies! I posted this on the YoungSurvival website and thought you may be interested in the info too if you don't already know about the U'ilani Fund:

My fabulous OBGYN, Mindy Goldman, just recently told me about an organziation she help found - The U'ilani Fund is a non-profit organization committed to providing support for complementary treatments for women with breast cancer in Santa Cruz, the San Francisco Bay Area, and Hawaii.

The U'ilani Fund has distributed over $100,000 to women undergoing breast cancer treatment since the organization was founded in 2001. If you are in treatment for breast cancer and your health insurance does not cover complementary care such as herbs, supplements, acupuncture or massage, you may qualify for U'ilani Funding.

Check out there website at www.uilanifund.org

I know I personally benefitted greatly from the massages, herbs and acupuncture treatments I receive during treatment. If you are in the SF Bay Area, Santa Cruz or Hawaii and do not have the financial means to enjoy some of these treatments, I urge you to apply for funds from the U'ilani Fund - it was formed in honor of a dear friend of Dr. Goldman's, a fellow doctor, who died of breast cancer in 2000 - Marina Lee U'ilani Bermudez.

I can think of no better way to honor Marina then to share information about this organization with you in hopes that some of you will be able to benefit.

With much love to you all,
Courtney
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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